Columnist Connie Chandler explains how letting go of her "ideal" checklist helped her build a diverse and reliable team of ...

SMA Awareness Month is a time to shine a light on the everyday challenges and celebrations with this disease, writes ...

Columnist Ari Anderson still needs to expand his team of home-care nurses, but the ones he has always go the extra mile.

Zolgensma is approved for any type of SMA related to SMN1 mutations, but shouldn't be administered to anyone with an active ...

In an exclusive Q&A, a Biogen exec discussed the developer's quest to 'rapidly' bring its experimental SMA therapy salanersen ...

Columnist Connie Chandler says that people in a wheelchair like to dance like everyone else and deserve some technical ...

Society labels Disabled people as symbols of pity or inspiration. A line in "Superman" resonated with columnist: "I'm human." ...

When SMA symptoms like muscle weakness leave her feeling like a Muppet, columnist Connie Chandler depends on the strength of ...

Columnist Helen Baldwin endured a devastating loss to SMA, but her experience led to friendships with people fighting ...

Spinal muscular atrophy (SMA) is a rare genetic condition characterized by progressive muscle weakness and atrophy. It mainly affects motor function, but often also causes problems with speaking, ...

Ninety percent of parents, expectant parents said they'd want to know early about SMA, and 80% said not screening newborns concerned them.

For Cure SMA, August is the time to shine a spotlight on the SMA community and to help raise awareness about the rare genetic ...